HOME DONATE REGISTER ABOUT THE EVENT SPONSORS MY ACCOUNT CCSVI.ORG

Welcome to CCSVI Alliance's first auto show!
 
CCSVI Alliance is pleased to announce "Opening Minds for CCSVI, Cruisin' for Multiple Sclerosis 2012" to be held at the Honeywell Life Safety parking lot (12 Clintonville Road) in Northford, CT on Saturday, September 8, 2012 from 12:00-6:00 (raindate: Sunday, September 9).

In addition to a fabulous array of cars, the day will feature music by DJ Frankie B and food trucks to satisfy your appetite.
 
Our goal is to raise funds to promote education and research about CCSVI and its relationship to Multiple Sclerosis (MS).  
 
You can help by either registering your vehicle and soliciting donations or by donating on behalf of a favorite vehicle or participant.  It's just that easy!
 
We hope to see you there! 
 
Jennine Kelley and family 
 
Kelley Family 
 
Opening Minds for CCSVI is an official fundraiser for
CCSVI Alliance, a 501(c)(3) charitable organization. 
Donations are tax-deductible to the extent allowed by law.
EIN: 27-1969551
 
 
 



Help us reach our goal of $15,000

$6,792 raised so far,   $8,208 to go!


 


What is Multiple Sclerosis and CCSVI?
 
Multiple sclerosis (or MS) is a chronic, unpredictable, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. In the U.S. there are approximately 400,000 people living with MS and another 200 are diagnosed every week. MS is significantly more common in women than men, and even though the disease is typically diagnosed between the ages of 20-50, individuals as as young as 2 and as old as 75 are known to have multiple sclerosis. While MS is thought to be an auto-immune disease, there is no cure for it and the drugs that are available to modify the disease course are not always effective, often have significant side effects, and are frequently very expensive.  
 
Chronic cerebrospinal venous insufficiency (CCSVI) is characterized by abnormalities and blockages in the veins that drain blood from the central nervous system (CNS), the brain and spinal cord. CCSVI was coined by Dr. Paulo Zamboni in 2008 when he identified that many MS patients had venous abnormalities.  Dr. Zamboni hypothesized that CCSVI could damage CNS tissue in a variety of ways, notably by breaching the blood brain barrier of stressed, dilated, and inflamed blood vessels, and leaking iron and other antigens into nearby tissues. This would explain an observed characteristic of MS that has been confirmed and reconfirmed over the years but never explained: MS lesions are “venocentric” – that is, they occur around veins in the brain and spinal cord.  Watch this introduction to learn more.
 
 
 
Research has linked CCSVI to MS, and is supported by multiple scientific observers dating back over 170 years. Pilot studies have indicated that CCSVI can be treated with an angioplasty procedure and that once corrected, MS symptoms may often significantly decrease for many patients.  Research is ongoing to confirm the relationship between CCSVI and MS, and the efficacy of treatment.
 
CCSVI Alliance encourages this ongoing research by fostering collaboration among medical professionals, patients, and advocates.  Thank you for supporting this collaboration and research into a promising new treatment for MS!
 
 

This is a SWEET fundraising site by Blue Sky Collaborative